Download NetLink - End Stage Renal Disease Network of Texas, Inc.

NetLink
November 2015
Inside this Issue:
Decreasing PatientProvider Conflict
4
News from the NHSN
Helpdesk
5
Community Corner
6
Finalized Clinical
Measures PY 2017
7
Preparing for CMS
2744 Surveys
8
5-Diamond Patient
Safety Program
10
KCER/FDA Alerts
11
KCER Disaster
Training Materials
11
Patient Engagement
Materials
11
Calendar
12
Patient’s Corner
13
FAQs from Dialysis Facilities about Healthcare
Personnel (HCP) Influenza Vaccination
Summary Data Reporting for Calendar Year
2016 CMS ESRD QIP
For Payment Year 2018 (calendar year 2016), the Centers for Medicare
and Medicaid Services (CMS) introduced a new reporting requirement to
its End-Stage Renal Disease (ESRD) Quality Incentive Program (QIP):
NHSN Healthcare Personnel (HCP) Influenza Vaccination Summary
surveillance. Dialysis facilities that are participating in QIP will collect HCP
influenza vaccination data, according to the HCP Influenza Vaccination
Summary Protocol (http://www.cdc.gov/nhsn/pdfs/hps-manual/
vaccination/hps-flu-vaccine-protocol.pdf), beginning with the 2015/2016
influenza season and report a summary of those data to NHSN on or
before May 15, 2016.
Q: Does my dialysis facility need to report HCP influenza
vaccination data to NHSN for CY2016?
Your facility may be eligible for NHSN HCP influenza vaccination reporting
if it satisfies both of these criteria:
 Your dialysis facility is Medicare-certified and has a CMS certification
survey date on or before January 1, 2016
 At least one employee, licensed independent practitioner, or adult
student/trainee/volunteer (as defined in the HCP Influenza
Vaccination Summary Protocol) will work on-site at your dialysis
facility for at least one day between October 1, 2015 and March 31,
2016
Please see the CMS ESRD QIP rule (http://esrdnetwork.org/wp-content/
uploads/CY2015PY2017_Final_Rule.pdf) for more detailed information.
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NetLink
November 2015
...Continued from page 1
Q: The hospital we are affiliated with already reports our dialysis facility’s HCP influenza
vaccination data; does our dialysis facility still need to report this data to NHSN?
If your dialysis facility is Medicare-certified, regardless of whether you share a CMS Certification
Number (CCN) with an affiliated hospital, your facility needs to report influenza vaccination
summary data for your HCP separately in NHSN. Beginning with the 2015-2016 influenza season,
the hospital should no longer report influenza vaccination data for HCP working in your dialysis
facility unless those HCP also work in other inpatient or outpatient departments of the hospital that
are covered by CMS reporting requirements for hospitals.
Q: My dialysis facility is already enrolled in NHSN for Dialysis Event Surveillance. What
do I need to do in NHSN to be prepared to report HCP data?
If your facility provides in-center hemodialysis and is already enrolled in NHSN, your facility’s NHSN
Healthcare Personnel Safety (HPS) Component needs to be activated. This step must be completed
before HCP influenza vaccination data can be reported. If your facility is part of a large dialysis
organization, your corporation may have already activated the HPS Component for your facility (you
can check on the “Facility Info” page). If your facility has not yet activated the HPS Component,
please have a user with administrator rights follow these instructions (http://www.cdc.gov/nhsn/
pdfs/dialysis/how-dialysis-facility-adds-hps-component.pdf).
Q: My peritoneal dialysis and/or home hemodialysis facility is not enrolled in NHSN.
What do I need to do to be prepared to report HCP data?
 If your facility shares a CCN with an in-center outpatient hemodialysis facility that is already
enrolled in NHSN, do not enroll your facility in NHSN separately. Instead, report your HCP
influenza vaccination data along with the in-center outpatient hemodialysis facility’s HCP
influenza vaccination data according to the HCP Influenza Vaccination Summary Protocol (http://
www.cdc.gov/nhsn/pdfs/hps-manual/vaccination/hps-flu-vaccine-protocol.pdf).
 If your facility does not share a CCN with any in-center outpatient hemodialysis facility, then
enroll your facility in NHSN and activate the HPS Component. Please contact the NHSN Helpdesk
for enrollment instructions ([email protected] with a subject line ‘Dialysis’).
Q: How do I enter HCP influenza vaccination summary data after I have activated the
HPS Component?
1. Login: Upon login to NHSN, users with access to multiple components will see the NHSN Landing
Page. Select “Healthcare Personnel Safety” from the component dropdown menu to access the
Healthcare Personnel Safety Component Home Page.
2. Add a Monthly Reporting Plan: A monthly reporting plan needs to be entered before HCP
influenza vaccination summary data can be reported. To enter a plan, from the HPS Component
Home Page select “Add” under “Reporting Plan” in the left-hand navigation bar. Enter any month
and year between July 2015 and June 2016 in the dropdown boxes and check the box marked
“Influenza Vaccination Summary,” then click the “Save” button. You only need to enter a single
monthly reporting plan for the entire influenza season.
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November 2015
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3. Report: According to the HCP Influenza Vaccination Summary Protocol (http://www.cdc.gov/
nhsn/pdfs/hps-manual/vaccination/hps-flu-vaccine-protocol.pdf) collect data for the 2015/2016
influenza season. After a monthly reporting plan is added, you may report HCP influenza vaccination
summary data by selecting “Add” under “Flu Summary” in the left-hand navigation bar and clicking
on “Continue.” When the summary form appears, select “2015/2016” in the dropdown box labeled
“Flu Season,” enter your data, and click the “Save” button. Report data to NHSN on or before May
15, 2016.
Q: Where can I get more information about reporting HCP influenza vaccination
summary data to NHSN?
Please see the Surveillance for Dialysis Healthcare Personnel Vaccination website (http://
www.cdc.gov/nhsn/dialysis/hcp-vaccination/index.html) for the reporting protocol, tables of
instructions, and training.
If you have questions about HCP influenza vaccination reporting, please contact the NHSN Helpdesk
at [email protected] and include “HCP Flu Summary– Dialysis” in the subject line of your e-mail.
If you have non-NHSN questions about CMS ESRD QIP, e-mail CMS at [email protected].
Alliant Quality Kidney Collaborative (AQKC) HAI Learning and Action Network held a
webinar on 9/23/2015 featuring presenters and experts from the CDC on this NEW QIP requirement
- reporting HCP influenza vaccination data to NHSN.
Go to http://www.aqkc.org/content/national-healthcare-safety-network to access the webinar video
and slides.
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NetLink
November 2015
Decreasing Patient-Provider Conflict
ESRD Network 14 receives many calls from patients wanting to file a grievance against his/her
dialysis facility. It is customary for Network 14 to also ask the grievant, “Is your facility aware of
your concerns?” Sometimes the grievant will say “No”, but more often he/she will say “Yes.” This
question is not asked to deter the grievant from filing a grievance, but to gauge what may have
occurred to address the grievant’ s concerns prior to contacting Network 14.
As a dialysis facility, when you are notified that a patient and/or caregiver has a concern regarding
care that is received, what steps do you take? The Patient Services Department would like to
provide a solution to increasing positive ways to resolving conflicts at the facility level.
The Decreasing Dialysis Patient-Provider Conflict (DPC) training kit was created to provide resources
to dialysis professionals to better understand, respond to, and decrease conflict. The DPC training
consists of nine modules that work to perpetuate the goals of your dialysis company. This is done by
providing staff with the skills and approaches needed to provide patient care with a patient-centered
approach. The kit includes a provider manual, DPC brochures, DPC Pocket Guides, DPC Conflict
Interactive Training Program (that provides a certificate of completion), and DPC Conflict Resolution
Resources for Dialysis Professionals Program Documents. All Medicare-certified facilities receive or
have received a copy of the DPC from the ESRD Network.
Conflict is inevitable, but the response to conflict can also be patient-centered and focused. Network
14 highly recommends that your facility complete this training on a routine basis in order to
reinforce additional ways of resolving conflict and improving the quality of care of all patients in the
unit. If your facility does not have a DPC training kit, please contact Network 14. The relationship
between the patient and the provider is essential to good dialysis care. Our vision is that all dialysis
patients have the best collaborative patient and provider relationship possible. DPC training can be
the first step.
Like us on Facebook.
To access go to www.facebook.com and
log in to your account. Look under “liked
pages,” and type in ESRD Network of
Texas.
Follow us on Twitter
@ESRDNetworkofTX
NHSN Enrollment
The link http://www.cdc.gov/nhsn/enrollment/index.html provides a stepby-step guide for successful completion of enrollment into NHSN.
Page 5
NetLink
November 2015
News from the NHSN Helpdesk
How to Improve Positive Blood Culture Surveillance in Your Facility
Your facility is responsible for reporting positive blood cultures among your in-center hemodialysis
outpatients. This includes positive blood cultures from specimens that were collected in any
outpatient setting or on the day of or on the day after a hospital admission.
Therefore, the Dialysis Event form prompts you to answer the following question when
reporting a positive blood culture:
Q1: Other than the dialysis clinic, where could my hemodialysis outpatient have a
positive blood culture that my facility is responsible for reporting?
· Hospital (on the day of or the day following admission) or E.D. –
o Including the emergency department (E.D.) or blood specimens collected on the
day of or the day after a hospital admission
· Other location –
o Other outpatient locations, such as a physician’s office or a nursing home
Q2: How can I improve my facility’s surveillance for positive blood cultures?
· Follow up on every hospitalization for every patient.
o Ask your patients if they went to the hospital since their last treatment.
o Request hospital microbiology lab results that include pathogen and susceptibility
information.
o Develop communication strategies with infection preventionists and other
staff at local hospitals.
o Investigate opportunities to share the electronic medical record system with local
hospitals.
·
·
Collect blood samples for culture whenever a bloodstream infection is suspected
and before antimicrobials are administered.
Remember, a positive blood culture should be reported regardless of whether or not a true
infection is suspected or whether the infection is thought to be related to hemodialysis.
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NetLink
November 2015
The Immunization Safety Office of the Centers for Disease Control (CDC) is pleased to announce the
launch of its redesigned and improved website. The site includes new and updated content and resources and was designed to provide a better user experience on all types of devices.
To access the new website, go to http://www.cdc.gov/vaccinesafety/index.html.
ASN Kidney Week 2015 Annual Meeting
November 3-8, 2015, San Diego Convention Center, San Diego, CA
For more information, visit:
http://esrdncc.org/event/asn-kidney-week-2015-annual-meeting/
North Texas Chapter of NANT
16th Annual Symposium
Continuing the Odyssey of Professional Growth
Sunday, November 15, 2015
Sheraton Arlington Hotel
1500 Convention Center Drive
Arlington, Texas 76011
817-261-8200
For more information contact:
Charlie Johnson, CHT President and Sec/Treasurer, 972-496-5727, [email protected]
The ESRD Network 14 NetLink is created and published under CMS contract number:
HHSM-500-2013-NW014C
End Stage Renal Disease Network of Texas, Inc. (aka: ESRD Network 14)
4040 McEwen Road, Suite 350 * Dallas, Texas * 75244
www.esrdnetwork.org * [email protected]
November 2015
NetLink
Page 7
Finalized PY 2017 Clinical Measure
Standardized Readmission Ratio
Measure Description
Number of observed and unplanned hospital readmissions
Risk-adjusted standardized hospital readmissions ratio of the number of observed unplanned readmissions to the number of expected unplanned readmissions.
Standardized Readmission Ratio
Lower rate desired
Numerator
Denominator
Facilities with fewer than 11 index hospital discharges are not eligible for the measure.
Index hospital discharges that:
1. End in death
2. Result in a patient dying within 30 days with no readmission
3. Are against medical advice
4. Include a primary diagnosis for certain types of cancer, mental health conditions or rehabilitation
5. Occur after a patient’s 12th admission in the calendar year
6. Are from a PPS-exempt cancer hospital
7. Result in a transfer to another hospital on the same day
The expected number of unplanned readmissions in each facility, which is derived from a model that accounts for patient characteristics and the discharging acute care hospitals involved.
Minimum Claims
1.
2.
1.
Hospitalizations are counted as events in the numerator if they (a) occurred within 30 days of a hospital discharge; and (b)
are not considered a “planned” readmission.
2.
Additional information about the measure can be found in the SRR Measure Methodology Report posted at
[http://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment- Instruments/ESRDQIP/061_TechnicalSpecifications.html].
Medicare Claims
REMIS, CROWNWeb, and other CMS ESRD administrative data
Data Source(s)
Additional
Information
Page 8
NetLink
November 2015
CMS-2744
Are you ready for the Annual Survey?
It’s almost time for the 2015 CMS-2744 Annual Survey. Are you ready? Is your facility and patient
data in CROWNWeb up-to-date and accurate?
The things your facility should do to be ready to complete the CMS-2744 and ensure your data is as
accurate as possible:
 Gain access to CROWNWeb.
 Verify your PART.
 Enter the Misc. Info data for your patients on the patients’ attributes pages.
 Run your Patient Roster Report.
 Request your data discrepancy reports from the Network.
 Misaligned, Missing, and Incomplete Treatments and Training Reports
 CROWNWeb Inaccurate Admit Reason Report
CROWNWeb Access
All Medicare-certified dialysis facilities must have access to and use CROWNWeb. It is the only way
to complete the mandatory CMS-2744 Annual Survey. CMS mandates that facilities have at minimum
TWO QIMS accounts (Security Official and End User Manager), through which you can access
CROWNWeb. The Network encourages each facility to have more than two users so that the CMS2744 can still be completed in a timely manner in the event of expected and unexpected losses of
personnel.
PART
Your PART should be verified every month by the eighth of the month. You must verify every
patient on the PART, including your transient and discharged patients.
Misc Info
The Misc Info data is entered on the Patient Attributes Page in CROWNWeb. It is located in the
Misc Info box at the bottom of the screen and includes Citizenship, Medicare Enrollment,
Current Employment, School, and Voc Rehab statuses. Please be aware that low Voc Rehab
activity may result in your facility participating in a Vocational Rehabilitation Improvement Plan.
Network 14 encourages you to enter this information now. For instructions on how to enter the
miscellaneous information on the patient attributes page, please see the “Editing Patient Attributes
Guide” available on the Network 14 CROWNWeb page at
http://esrdnetwork.org/professionals/qip/crownweb/.
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November 2015
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Patient Roster Report
The “Patient Roster Report” allows users to run and print a report that includes all patients present
at the selected facility within the user’s scope as of a specific date or date range. It will include all
patient records admitted to the facility within the date range, even if the patients have already been
discharged. This will allow you to find any patients that may have been inadvertently discharged
from your facility or discover that some patients were never admitted.
Data Discrepancy Reports
These reports are generated and disseminated by the Network on weekly or monthly bases. They
provide the UPIs of patients whose records do not follow the CROWNWeb Business Rules and may
cause issues on your CMS-2744. For details on some of these reports, please see the May 2015
issue of the Network’s NetLink, available at http://esrdnetwork.org/our-network/newsletters/. Please
contact the Information Management Department to request these reports outside of the normal
distribution schedules.
These preparation tasks should be done by all Network 14 facilities, whether they are
part of a Batch Submitting Organization (BSO) or not. (BSOs are: DaVita, FMC, DCI, and
NRAA.)
If you have questions about editing the attributes page, you can contact the Network 14
Information Management Department at 972-503-3215 (ext. 322, 326, 318, 320, or 312) or
[email protected].
DO
NOT
EMAIL
any
patient-specific
information (name, date of birth, Social
Security Number, etc.) to the Network 14
office.
ESRD Network 14 announces that
Nephrology Today & Tomorrow 2015 will not be held.
We hope to see everyone in 2016!
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NetLink
November 2015
Network 14’s 5-Diamond Patient Safety Program
5 DIAMOND STATUS





























1 DaVita Facility in El Paso
Ameri-Tech Kidney Center Bedford
Christus Children’s Kidney Center
Cielo Vista Dialysis
FMC Austin South
FMC Greenway Kidney Center
Liberty Dialysis Bryan
NNA Marble Falls
Plaza Drive Dialysis
RCG Center Dialysis
Reeves County Hospital Dialysis
Renal Center of Frisco
Renal Center of Lewisville
Renal Center of Nederland
Renal Center of Orange
Satellite Dialysis Kyle
Satellite Dialysis Round Rock
Satellite Dialysis Southwood
Satellite Healthcare Metric
Satellite Healthcare Mueller
Scott & White Artificial Kidney Unit
Stafford Dialysis
Texas Children’s Hospital Dialysis
University Dialysis West
USRC Delta Dialysis
USRC Mid Valley Weslaco Dialysis
USRC Rio Grande Dialysis
UTSW Dallas Dialysis
Wilbarger General Hospital Dialysis of
Vernon
4 DIAMOND STATUS


Angelo Kidney Connection
Satellite Healthcare South Austin
3 DIAMOND STATUS





Dialysis Services of West Texas
Global Dialysis Plus
1 Renal Ventures Facility in Dallas
Renal Center of Plano
University Dialysis South
2 DIAMOND STATUS








1 Independent Facility in Houston
DSI Bryan Dialysis
FMC West Seguin
1 Renal Ventures Facility in Dallas
NRI El Paso East
Renal Care Group Alice
South Austin Dialysis
USRC Friendswood Dialysis
1 DIAMOND STATUS










Childress Regional Medical Center Dialysis
Dialysis Services of Allen
1 DSI Facility in El Paso
1 DSI Facility in Laredo
FMC Dialysis Services of Waxahachie
Scott & White Killeen Dialysis West
Shannon Dialysis Center
1 Independent Facility in Brady
SNG Renal Solutions Dialysis Center
SNG Sandcastle Dialysis
Page 11
NetLink
November 2015
KCER and FDA Alerts and Recalls
The ESRD Network of Texas, Inc. is notified by both the Kidney Community Emergency Response
(KCER) and the Federal Drug Administration (FDA) when there is a product alert or recall.
You can access information concerning recalls and alerts from our website at
http://esrdnetwork.org/our-network/news under Special Alerts and Recalls.
KCER Emergency Preparedness Resources
KCER has emergency preparedness training modules for dialysis facilities, pandemic planning, and
personal preparedness available. Slides and training scripts are also available on the ESRD Network
14 website at http://esrdnetwork.org/disaster-planning/.
The best way to find yourself is to lose yourself in the service of others.
- Mohandas Gandhi
PATIENT ENGAGEMENT MATERIALS FOR NOVEMBER 2015
Materials for the Patient Engagement Calendar for the month of November 2015 can be located on
our website at http://esrdnetwork.org/patients-families/pfcc/.
www.esrdnetwork.org
Family-Centered Care
Patients and Families
Patient Engagement and Patient-and
Page 12
NetLink
November 2015
November 2015
Sun
1
Mon
2
Tue
3
Wed
4
Thu
5
Fri
6
Sat
7
AQKC CW
Report
Cards
released
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
27
28
EMResource
and PART
updates due
Network 14 office closed
29
30
Dec 1
September
clinical
month
closure
HAI focus facility CDC audits
are due into NHSN by 12/1
Page 13
NetLink
November 2015
Patient’s Corner
Written for patients
The National Kidney Foundation has patient education, tips, recipes, and a lot more
available on its website at https://www.kidney.org/.
Like us on Facebook.
To access go to www.facebook.com and
log in to your account. Look under “liked
pages,” and type in ESRD Network of
Texas.
Follow us on Twitter
@ESRDNetworkofTX
2015 Patient Engagement Calendar
Each month a new educational topic is available for Texas ESRD patients. November’s
topic is “Take Care of Your Emotional Health.” If you have not received your
education flyer for November, ask your social worker for a copy, or these materials
can be located on the ESRD Network 14 website at http://esrdnetwork.org/patientsfamilies/pfcc/ (www.esrdnetwork.org
Patients and Families
Patient
Engagement and Patient-and Family-Centered Care).
To contact the Network for assistance or to file a grievance:
Patient Toll-free Number: 1-877-886-4435 (patients only please)
Facility staff: 972-503-3215
Email: [email protected]
Facility staff: Post both the English and Spanish pages by the patients’ scales, as well
as near the sink that the patients use to wash their accesses, and in the lobby/waiting
room.
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NetLink
November 2015
The DPC Education Center is a great resource for dialysis patients and their families.
For more information, go to the DPC website at http://dpcedcenter.org/.
AAKP HealthLine—Upcoming Webinar!
Eating Healthy for Thanksgiving!
Date: November 18, 2015
Time: 7:00 p.m. - 8:00 p.m. ET
Speakers: Patricia Obayashi, MS, RD, CDE and Patient Speaker
Register at https://attendee.gotowebinar.com/register/4854943440394623233
Dialysis Patient Resource
Are you interested in RESEARCH about dialysis? POLICY issues about
insurance or access to care? The latest news on TRANSPLANTATION? If so,
Dialysis Patient Citizens (DPC) can help you stay informed!
The DPC Education Center is dedicated to improving kidney patients’ quality of life
and reducing the occurrence of ESRD through education and by developing
awareness of dialysis and kidney disease issues, improving the partnership between
patients and caregivers, and developing favorable public policy solutions.
For the most up-to-date information, visit the DPC website:
Research, innovation and care quality news:
http://dialysispatients.org/advocacy/research-innovation-quality
Policy and advocacy news:
http://dialysispatients.org/advocacy/key-issues
Treatment options:
http://dialysispatients.org/advocacy/key-issues/treatment-options
Transplantation:
http://dialysispatients.org/advocacy/transplantation
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NetLink
November 2015
To enroll by phone:
1-800-MEDICARE (6334227)
To enroll online:
Medicare Part D: Open
Enrollment Period
http://www.medicare.gov/signup-change-plans/get-drugcoverage/get-drugcoverage.html
Other Resources:

Social Security-help
with medication
coverage
1-800-772-1213

Medicare plan finder:
https://www.medicare.gov/
find-a-plan/questions/
home.aspx
The open enrollment for Medicare’s Part D prescription
coverage plan is here. This is the time for you to look over
your current medications and choose a Part D plan that’s
right for you! Your Medicare health or prescription drug
plan can change how much it costs and what it covers each
year. Even if your plan’s cost and coverage stay the same,
your health and finances may have changed.
Review your plan each year to make sure it will still meet
your needs. If you are satisfied with your current coverage,
you don’t need to change plans.
Below are some common medications you need to look for
in your plan.
Dates to Remember:
OPEN ENROLLMENT
October 15 through
December 7, 2015
NEW COVERAGE
BEGINS
January 1, 2016
Pre-Transplant
Common
Medications:
Dialysis
Medications:  Valcyte/
 Renvela
Valgancyclovir
 Sensipar
 Nystatin liquid
 Phoslo
 Mycelex
 Fosrenol
(clotrimazole)
Post-Transplant Medications:
To file a grievance, contact
Network 14 at: Phone - 1-877886-4435; Fax - 972-503-3219;
Email - [email protected];
Mail - 4040 McEwen Rd Suite
350, Dallas, TX 75244;
Website www.esrdnetwork.org

Be sure your Medicare
Part D plan is under
$35 a month for Kidney
Health Care to cover
your Medicare Part D
prescription plan. Also
remember to let your
social worker
know what plan you
are on or if you change
plans!
DO NOT include your antirejection medications as you
review Medicare Part D plans for 2016. If you change
plans, let your transplant social worker know or call
Kidney Health Care at 1-800-222-3986.
Page 16
NetLink
November 2015
You can prepare for an influenza pandemic now. You should know both the magnitude of what
can happen during a pandemic outbreak and what actions you can take to help lessen the
impact of an influenza pandemic on you and your family. This checklist will help you gather the
information and resources you may need in case of a flu pandemic.
During a Pandemic
Limit the Spread of Germs and Prevent Infection
Avoid close contact with people who are sick. When you are sick, keep your distance from
others to protect them from getting sick too.
If possible, stay home from work, school, and errands when you are sick. You will help
prevent others from catching your illness.
Cover your mouth and nose with a tissue when coughing or sneezing. It may prevent
those around you from getting sick.
Washing your hands often will help protect you from germs.
Avoid touching your eyes, nose or mouth. Germs are often spread when a person
touches something that is contaminated with germs and then touches his or her eyes,
nose, or mouth.
Practice other good health habits. Get plenty of sleep, be physically active, manage your
stress, drink plenty of fluids, and eat nutritious food. (ready.gov/pandemic)
Additional Resources
Ready.gov
http://www.ready.gov/pandemic
CDC
http://www.cdc.gov/flu/keyfacts.htm
American Public Health Association
http://www.getreadyforflu.org/facts/PandemicFluFAQs.pdf
American Red Cross
http://www.redcross.org/images/MEDIA_CustomProductCatalog/m4340142_TakingCareFlu.pdf
The Flu Season
is Coming!
Stopping the
FLU
Is up to YOU!
FLU FACTS
 October to
November is
the best time
to get a flu
shot, but you
can get one
after that too
How do I know if it’s the flu, or just a cold?
Symptoms
Flu
Rarely
Occurs
Productive
cough
High fever is common
Stuffy nose
Common
Not common
 Shots are
given at no
cost to
Medicare
clients
Sore throat
Common
Not common
Headache
Rarely
occurs
Common
Muscle aches
Mild
Common, often severe
 The flu shot
cannot cause
the flu
Tiredness/weakness
(fatigue)
Exhaustion
Uncommon
Severe, lasting up to 3 weeks
Never
Noticeable, early onset
Onset
Gradual
Sudden
 ESRD patients
cannot take
the nasal form
of the flu shot
Fever
Cold
Cough
Dry, non-productive cough
Prevention Tips

Wash your hands often with soap and warm
water

Cover your nose and mouth with a tissue
when you cough or sneeze, do not use your
hands

Stay home if you have a fever and avoid contact with others

Be sure to call your dialysis center to tell them you are sick,
they can answer any questions you may have!
To file a grievance contact Network 14 at:
Phone: 1-877-886-4435* Fax: 972-503-3219*Email:[email protected]
Address: 4040 McEwen Rd, Suite 350, Dallas, TX 75244
Website: www.esrdnetwork.org.
Page 18
November 2015
NetLink
Care Partners: Taking an Active Role
Almost 40% of all adult Americans are family care partners for a loved one, according
to the Caregiver Action Network. In November, we celebrate National Family
Caregivers Month to recognize the support provided by family care partners across
the country. Care partners can also be anyone who supports someone who is ill or
disabled in being as healthy, active, and independent as possible.
People with chronic illnesses face all kinds of challenges. Care partners can help by
being the “connecting thread” that leads them through the healthcare maze. They
can also support a person’s health and wellness goals.
As a care partner for someone on dialysis, you can help improve his or her health and
well-being in many ways. You could help your loved one better understand his or her
illness. You could also support your loved one in being an active part of his or her
healthcare team. Helping the patient come up with questions to bring to the doctor
and dialysis care team is a way to do this.
You may also want to ask the care team how you can help your loved one follow his
or her care plan. Go with him or her to medical appointments, encourage attendance
at dialysis care plan meetings, and offer to take notes. All of your efforts and support
can help the patient live a happier, healthier life.
It’s important to also remember to take care of yourself. Being a care partner can be
demanding at times, especially if you work full-time or have other family members
that you take care of.
As Megan says on page 18, ask for help when you need it. Care partners need care,
too!
This article has been provided by the ESRD National Coordinating Center (NCC).
1979 Marcus Avenue, Suite 105 · Lake Success, NY 11042-1072
Phone: 516-209-5253 · Fax: 516-326-7805 · [email protected]
www.esrdncc.org · www.kcercoalition.com
Page 19
November 2015
NetLink
Megan: You Are Not Alone
Megan married her husband, Roy, in 2009. Roy had high blood pressure for years, but
he took his medications. He was an athlete who took care of his body. All of this
changed on their daughter’s first birthday in 2011. Roy became ill and was admitted
to a hospital. He was diagnosed with pancreatitis. Tests showed that his kidneys had
stopped working.
Roy started peritoneal dialysis and was listed on the transplant waiting list. He was
stable, but still very sick. Both Roy and Megan found the challenge of managing Roy’s
condition while still caring for their family stressful.
“I was always worried and felt like I was parenting him, along with all the kids,”
Megan said. “We were trying to [protect] the kids from how sick he was. [I knew] he
was going to be okay, but there’s still a huge loss,” she said. “For better or for worse,
in sickness and in health—it just came a little earlier than we expected.”
Megan is a social worker. She found that her training helped her find a way that she
and Roy could each be respectful of the other’s needs. It also helped her to see
different perspectives and to let people know when she needed support.
After a year and a half on dialysis, Roy received a living donor transplant from
Megan’s brother-in-law. Megan is grateful for the support that her family received
throughout the process of transplantation. She also wants to share with other care
partners that it’s important to take care of yourself as well as your loved one.
“Ask for help if you need it,” she said. “Try to identify somebody who can be a
sounding board on days that are hard. For every person who’s on dialysis, there’s
someone who’s supporting them, and [that person] needs care, too.”
This publication was developed under Contract Number HHSM-500-2013-NW002C, titled “End Stage Renal Disease
National Coordinating Center (ESRD NCC)”, sponsored by the Centers for Medicare & Medicaid Services (CMS),
Department of Health and Human Services. The contents presented do not necessarily reflect CMS policy.
1979 Marcus Avenue, Suite 105 · Lake Success, NY 11042-1072
Phone: 516-209-5253 · Fax: 516-326-7805 · [email protected]
www.esrdncc.org · www.kcercoalition.com
Página 20
NetLink
Noviembre 2015
Rincón del paciente
Escrito por pacientes
La Fundación Nacional del Riñón (NKF) tiene educación para el paciente, sugerencias,
recetas y mucho más.
Para acceder esta información, consulta https://
www.kidney.org.
Diga que le agrada nuestro sitio (Like) en Facebook
¡¡¡La Red de ESRD de Texas ha entrado al mundo de los Medios Sociales!!!
Diga que le agrada nuestro sitio (Like) en Facebook
https://www.facebook.com/pages/ESRD-Network-of-Texas/415497655222823
Calendario de Participación del Paciente para 2015
Cada mes hay un nuevo tema educativo disponible para los pacientes de ESRD de
Texas. El tema de Noviembre es "cuide su salad emocional”. Si todavía no ha recibido
su volante educativo de Noviembre, pida una copia a su trabajador social o puede
encontrar estos materiales en el sitio web de Network 14 en http://esrdnetwork.org/
patients-families/pfcc/.
Para comunicarse con la Red y pedir ayuda o presentar una queja:
Número de Teléfono Gratuito para Pacientes: 1-877-886-4435 (solamente pacientes por favor)
Personal de las Instalaciones: 972-503-3215
Correo electrónico: [email protected]
Instrucciones al Personal de las Instalaciones- cuelgue las paginas en inglés y español
cerca de las basculas de los pacientes y el fregadero que usan los pacientes para
lavar sus accesos y en el vestíbulo/sala de espera.
Página 21
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Noviembre 2015
El Centro de Educación de DPC
El Centro de Educación de DPC es un magnífico recurso para los pacientes de diálisis y
sus familias. Si desea obtener más información, visite el sitio de DPC en http://
dpcedcenter.org/.
AAKP HealthLine ¡Próximo webinar!
¡Comer saludable en el Día de Acción de Gracias!
Fecha: 18 de noviembre de 2015
Hora: 7:00 p. m. a 8:00 p. m., hora del Este
Conferencistas: Patricia Obayashi, MS, RD, CDE y Conferencista para Pacientes
Inscríbase en https://attendee.gotowebinar.com/register/4854943440394623233
Recursos de Pacientes de Diálisis
¿Está usted interesado en la investigación acerca de la diálisis? ¿Cuestiones
de política sobre el seguro o el acceso a la atención? ¿Las últimas noticias
sobre el trasplante? Si es así, Pacientes Ciudadanos de Diálisis (DPC) puede
ayudarle a mantenerse informado!
El Centro de Educación DPC se dedica a mejorar la calidad de vida de los pacientes
renales y la reducción de la incidencia de enfermedad renal terminal a través de la
educación y el desarrollo de conciencia de los problemas de diálisis y la enfermedad
renal, al mejora de la colaboración entre pacientes y cuidadores, y el desarrollo de
soluciones de políticas públicas favorables.
Para más información, visite el sitio web DPC:
· Investigación, noticias de calidad innovación y cuidado:
http://dialysispatients.org/Advocacy/Research-Innovation-Quality
· Política y noticias de la promoción:
http://dialysispatients.org/Advocacy/Key-issues
· Opciones de tratamiento:
http://dialysispatients.org/Advocacy/Key-issues/treatment-options
· Trasplante:
http://dialysispatients.org/Advocacy/Transplantation
Pagina 22
NetLink
Noviembre 2015
Para inscribirse por
teléfono:
1-800-MEDICARE (633-4227)
Para inscribirse en línea:
http://www.medicare.gov/signup-change-plans/get-drugcoverage/get-drugcoverage.html

Otros recursos: Ayuda
del Seguro Social con
cobertura de
medicamentos
1-800-772-1213
Buscador de planes de
Medicare: https://
www.medicare.gov/find-aplan/questions/home.aspx
Medicare Part D:
Periodo de inscripción abierta
La inscripción abierta para el plan de cobertura de prescripción
de Medicare Part D se está acercando rápidamente. ¡Este es el
momento para revisar sus medicamentos actuales y elegir un
plan Part D adecuado para usted! El costo y obertura de su
plan de salud o de medicamentos Medicare puede cambiar cada
año. Incluso si el costo y la cobertura de su plan no cambia, es
posible que su salud y sus finanzas hayan cambiado.
Revise su plan cada año para asegurarse de que satisfaga sus
necesidades. Si usted está satisfecho con su cobertura actual, no
tiene que cambiar de plan.
A continuación se muestran algunos de los medicamentos
Fechas para recordar: comunes que debe buscar en su plan.
Medicamentos
comunes de
De el 15 de octubre hasta el
diálisis:
7 de diciembre de 2015
 Renvela
LA NUEVA COBERTURA  Sensipar
 Phoslo
COMIENZA
 Fosrenol
El 1 de enero de 2016
INSCRIPCIÓN ABIERTA
Si tiene alguna queja, contacte a
Network 14 al: 1-877-886-4435
Fax - 972-503-3219
Correo electrónico:
[email protected].
4040 McEwen Rd Suite 350,
Dallas, TX 75244
www.esrdnetwork.org
Medicamentos
para pretrasplante:
 Valcyte/
Valgancyclovir
 Líquido de
nistatina
 Mycelex
(clotrimazol)
Medicamentos para posttrasplante:

Asegúrese de que su plan
de Medicare Part D sea
menos de $35 al mes
para que el Programa de
Salud Renal cubra su
plan de medicamentos
con receta de Medicare
Part D. ¡También
infórmele a su
trabajador social qué
plan tiene o si cambia de
plan!
NO incluya los medicamentos antirechazo mientras revisa los planes Medicare Part D para el año
2016. Si cambia de planes, infórmele a su trabajador social de
trasplante o llame al Programa de Salud Renal (Kidney Health
Care) al 1-800-222-3986.
Pagina 23
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Noviembre 2015
Puede prepararse para una pandemia de influenza (gripe) hoy. Debe conocer la magnitud de lo que
puede suceder durante un brote pandémico y qué medidas puede adoptar para ayudar a mitigar el
efecto que una pandemia de influenza (gripe) puede tener en usted y su familia. Esta lista de verificación
lo ayudará a recopilar la información y los recursos que puede necesitar en caso de una pandemia de
influenza (gripe).
Durante
Limite la transmisión de gérmenes y prevenga infecciones
Evite el contacto cercano con personas enfermas. Si está enfermo, mantenga distancia con las
demás personas para evitar que se enfermen también.
De ser posible, quédese en su hogar y no vaya a trabajar, a la escuela ni haga diligencias si está
enfermo. Ayudará a evitar que otras personas se contagien.
Cúbrase la boca y la nariz con un pañuelo cuando tosa o estornude. Esto puede evitar que las
personas que lo rodean se enfermen.
Lavarse las manos con frecuencia lo ayudará a protegerse de los gérmenes.
Evite tocarse los ojos, la nariz o la boca. En general, los gérmenes se transmiten cuando una
persona toca algo contaminado con gérmenes y, luego, se toca los ojos, la nariz o la boca.
Emplee otros buenos hábitos de salud. Duerma bastante, permanezca físicamente activo,
maneje el estrés, beba mucho líquido y consuma alimentos nutritivos. (ready.gov.es.pandemia)
Recursos Adicionales
Ready.gov - Pandemia
http://www.ready.gov/es/pandemia
CDC- Datos clave sobre la influenza y la vacuna
contra la influenza
http://espanol.cdc.gov/enes/flu/keyfacts.htm
American Public Health Association -La gripe pandémica y
la gripe estacional
http://www.getreadyforflu.org/facts/FluFAQsSP.pdf
American Red Cross-El cuidado de personas con gripe
http://www.redcross.org/images/MEDIA_CustomProductCatalog/m4340145_TakingCareFlu_SP.pdf
Factos de
Influenza
 De Octubre a
Noviembre es
el mejor
tiempo para
obtener la
vacuna de
influenza,
pero puede
obtener una
después
también
 Vacunas se
dan sin costo
a clientes de
Medicare
 La vacuna de
influenza NO
causa la
influenza
 Pacientes con
falla de
riñones NO
pueden tomar
La Temporada de
Influenza Esta
Cerca!
Deteniendo la
influenza depende
de USTED!
Como se si es la influenza o solamente un
resfriado?
Sintomas
Resfriado
Influenza
Fiebre
Raro
Fiebre Alta es común
Tos
Tos con flema
Tos seca, sin flema
Nariz mormada
Común
No es común
Dolor de garganta
Común
No es común
Dolor de la cabeza
Raro
Común
Dolores musculares
Leve
Común, y muchas veces grave
Fatiga
No es común
Nunca
Grave, durando hasta tres
semanas
Noticiable, empieza temprano
Inicio
Gradual
De repente
Cansancio/Debilidad
Consejos de prevención

Lave sus manos seguido con jabón y agua caliente

Cubra su nariz y boca con una toallita cuando tosa o
destornude, no usa las manos

Quédese en casa si tiene fiebre y evite contacto
con otros

Asegure llamar a su centro de diálisis para informales que esta
enfermo, ellos pueden contestan cual quien preguntas que tiene!
Si tiene alguna queja contacte Network 14:
Teléfono: 1-877-886-4435* Fax: 972-503-3219* Correo electrónico:
[email protected]
Dirección: 4040 McEwen Rd, Suite 350, Dallas, TX 75244
Website: www.esrdnetwork.org.
Página 25
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Noviembre 2015
Participantes en el cuidado: cómo tener un papel activo
Casi 40% de todos los estadounidenses adultos son participantes en el cuidado de un
ser querido de acuerdo con Careciera Actinon Network. En noviembre celebramos el
Mes Nacional de las Personas que Cuidan de un Familiar, para reconocer el apoyo
proporcionado por los participantes en el cuidado de un familiar en todo el país. Los
participantes en el cuidado también se refiere a cualquier persona que apoye a
alguien que está enfermo o discapacitado para que pueda estar lo más sano, activo e
independiente posible.
Las personas con enfermedades crónicas enfrentan toda clase de desafíos. Los
participantes en el cuidado pueden ayudar con ser el "lazo de unión" que los guía a
través del laberinto de la atención médica. También pueden apoyar las metas de
salud y bienestar de una persona.
Como participante en el cuidado de alguien que recibe diálisis, usted puede mejorarle
la salud y bienestar de varias formas. Puede ayudar a su ser querido a comprender
mejor la enfermedad. También puede apoyar a su ser querido siendo una parte activa
del equipo de atención médica. Una forma de hacer esto es ayudar al paciente a
elaborar las preguntas que necesita hacer al médico y al equipo encargado de la
diálisis.
También puede preguntarle al equipo encargado cómo puede ayudar a su ser querido
a cumplir con el plan de atención. Acompañe a su ser querido a las citas médicas,
fomente la asistencia a las reuniones para el plan de diálisis y ofrezca tomar notas.
Todo su esfuerzo y apoyo puede ayudar al paciente a vivir una vida más sana y feliz.
También es importante no olvidar que usted debe cuidarse. Ser un participante en el
cuidado a veces puede ser muy demandante, especialmente si trabaja tiempo
completo o tiene que encargarse de otros familiares.
Como dice Megan en la página 18, pida ayuda cuando la necesite. ¡Los participantes
en el cuidado también necesitan atención!
Este artículo fue proporcionado por NCC.
1979 Marcus Avenue, Suite 105 · Lake Success, NY 11042-1072
Phone: 516-209-5253 · Fax: 516-326-7805 · [email protected]
www.esrdncc.org · www.kcercoalition.com
Página 26
NetLink
Noviembre 2015
Megan: no está sola
Megan se casó con Roy en el 2009. Roy había tenido hipertensión arterial durante
años, pero tomaba sus medicamentos. Era un atleta que cuidaba de su cuerpo. Todo
esto cambió después del primer cumpleaños de su hija en el 2011. Roy se enfermó e
ingresó en un hospital. Le diagnosticaron pancreatitis. Las pruebas mostraban que
sus riñones habían dejado de trabajar.
Roy empezó con diálisis peritoneal y lo pusieron en la lista de espera para trasplantes.
Estaba estable, pero aún muy enfermo. Tanto Roy como Megan descubrieron que era
muy estresante manejar el estado médico de Roy a la vez que continuaban cuidando
a su familia.
"Me mantenía preocupada todo el tiempo y sentía como que estaba siendo su mamá
al igual que con nuestros hijos", dijo Megan. "Estábamos tratando de [proteger] a los
niños para que no supieran lo enfermo que se encontraba. [Yo sabía] que él iba a
estar bien, pero aun así sentía una gran pérdida", dijo ella. "En las buenas o en las
malas, en salud y en enfermedad, sucedió un poco más rápido de lo que
esperábamos".
Megan es una trabajadora social. Descubrió que su preparación la ayudó a encontrar
una forma como Roy y ella podían ser respetuosos con las necesidades del otro.
También la ayudó a ver perspectivas distintas y a dejar saber a otros cuando
necesitaba apoyo.
Después de un año y medio en tratamiento de diálisis, Roy recibió un trasplante de
donante vivo del cuñado de Megan. Megan se siente agradecida con el apoyo que
recibió su familia durante el proceso del trasplante. También desea compartir con
otros participantes en el cuidado que es importante cuidarse uno mismo al igual que
al ser querido.
"Hay que pedir ayuda si uno la necesita", dice ella. "Trate de identificar a alguien que
pueda ser un apoyo sólido en los días difíciles. Por cada persona que tiene diálisis,
hay alguien que está apoyándole y [esa persona] también necesita atención".
Esta publicación se desarrolló bajo el Contrato número HHSM-500-2013-NW002C, con el título "Centro de
Coordinación Nacional de la Insuficiencia Renal en Etapa Terminal (ESRD NCC, en inglés)”, patrocinado por los
Centros para Servicios de Medicare y Medicaid (Centers for Medicare & Medicaid Services, CMS), Departamento de
Salud y Servicios Humanos. El contenido presentado no necesariamente refleja la política de CMS.